What Determines our Well-being?

She is blind. Cataracts, or maybe glaucoma. Maybe diabetic retinopathy or some other word she will never be able to pronounce or even see. Her prescriptions are filled by a relative, at a pharmacy that only provides half the medication she needs, and brought home to her fumbling fingers. She makes her way to clinic unaccompanied, navigating footpaths and public transportation by memory if not sight. Arrives to hear that her blood pressure is elevated, and her sugar is out of control. Insulin, the doctor says. Never mind that she has not been able to get her Metformin pills for weeks and weeks. Never mind that she has no refrigerator. Never mind that she cannot see. Your sugar is too high and there are no more pills we can prescribe for you. Insulin.

He has HIV. Contracted from some faceless sexual contact long ago; he rages at the diagnosis, a short-sighted anger that settles on his most recent partner. But CD4 cells are warriors, and do not drop to 50 overnight. How could this happen to him? He disappears for months. Changes his number. Skips town. Grows a beard to hide the tattoos. Loses himself in alcohol and cannabis. Cannot forget. He returns on a hospital gurney, face drawn, spiking fevers. Newly diagnosed, the internist says. Never linked to care, the social worker corrects him. If he lives, he will join the clinic. Fire spent, bitter and resigned. If he lives.

What are the social determinants of health?

According to the World Health Organization, these are the conditions into which people are born, grow, work, live and age and the wider set of forces and systems that shape daily life.

In other words, everything. Your world as you know it determines how healthy you can or cannot be. If we were fish, social determinants would be our fish tank and everything in it. Which would be great, because we could just upgrade to a bigger tank with better water and a more efficient pump/filtration system and most of our problems would be solved. Except for food, I guess. I don’t know, I’m getting out of my depth.

Social determinants of health can be thought of as any feature of life that supports people being well or makes it more likely for them to get sick. Things like employment, finances, food supply, housing, education, clean air and water, transportation, and access to healthcare. The list goes on. If we take a curative approach and think of health as treating disease then the social determinants are all the things that get in the way of someone reaching the doctor, getting an accurate diagnosis, getting the right treatment and recuperating successfully. If you stop to think about it, there are a million ways this process can be thwarted.

As a field of significance, social determinants have been on the health agenda for decades, since the 1940s. But they were relegated to the back burner in favour of alternative (read: neo-liberal) approaches to public health. Finally in the early 2000s they were revived and examined more closely, giving us hard science on health inequalities across the globe. This is a prime example of the gap between people who make health policies and the people who live with them. I’m sure the man or woman walking into a doctor’s office could easily have easily told you that the reason they ignored that suspicious lump for so long was that they couldn’t get time off work to visit the doctor and they were trying to save up money to buy the medication but the children had to go to school. Social determinants impact health in real time.

When we think about our roles as medical practitioners (and here I can only speak for doctors) we imagine waving a stethoscope and pen to make people healthy. With the right investigations and the right remedies blood pressures will be controlled, diabetic feet will heal and that infection will clear up in no time. But the reality is that our ten-minute consultation is merely a blip in the busy lives of the people who access healthcare. Our brief contact can only do so much and no more. In medical school we are told in not so many words that you can lead a horse to water, but you can’t make him drink. But our patients are nowhere near the pond. They are on the other side of the hill, separated by hot coals, barbed wire and quicksand.

There just isn’t much exposure to the social determinants in medical school. Public health and primary care docs try to explain this complex and layered concept on two short Community Health rotations to students who care more about cramming for exams than pondering the barriers to care for Miss Ivy in rural St. Mary. But this feels like a failure of the medical education system. I’ve mentioned before that we can’t all be paediatric neuro-oncologists, yet medical schools consistently emphasize the rote memorization of esoterica as the most important part of being a doctor. We graduate into hospitals that perpetuate this idea of health as a binary: either you are ill (in the hospital) or well (not in the hospital), failing to recognize that health exists on a continuum that is constantly shifting in relation to the environment.

We have to shift our thinking to come up with new and better ways to preserve and promote wellness. We have to train new generations of physicians and allied health workers to look beyond the confines of their facilities to the communities where people live and work. Meaning the places where health actually happens (or doesn’t). We have to ask hard questions and be open to the answers. Until we are ready to grapple with the consequences of our societal systems and structures, we will never be able to reach our vision of “Health People, Healthy Environment”, not in 2030 or ever at all.

Desolate, yet all undaunted

There are days when I feel like a balm in Gilead and then there are days when I feel like a band-aid on a diabetic foot. On days like those, when my best intentions butt up against the machinery of social injustice like a very small recalcitrant cog in a very large and impersonal wheel, on those days I dream a little dream about the kind of system I want to work in, and the kind of care I want my patients to receive.

In my dream, healthcare is widely acknowledged as a fundamental right. Instead of flexing their defense budgets, countries flex their high life expectancy and superb quality of life. Within governments across the world, health and wellness ministries get the lion’s share of resources because without them people would literally die. This includes ministries responsible for food, housing, water and electricity so that people can eat with clean hands in safe dwellings and store food in healthy ways.

In my dream, we preach and practice the bio-psycho-social model of health by recruiting and training a large cadre of mental health and social health professionals, alongside nurses, doctors and pharmacists. Mental health isn’t stigmatized, it’s a routine part of formal education (along with gender and cultural studies) from the kindergarten level onward.

In my dream, no one struggles to pay for healthcare because there’s no such thing as ‘payment’ for a service that is essential to human well-being. Healthcare providers are treated with dignity and respect by their employers, who understand the traumatizing nature of the work they do and encourage them to take care of their own health. This way they do not fantasize about migrating with their expertise to work in more lucrative environments. We retain enough healthcare providers of various disciplines so there are no long waits for non-urgent care. We have enough equipment and people to maintain the equipment because management no longer believes in quick fixes and ignoring a problem until someone else has to deal with it.

Patients can wake up at a sensible hour and easily travel to their nearest health facility, because it is always less than an hour away. They can visit their provider, do their investigations and fill their prescriptions on the same day. Language interpreters are available, bathrooms are gender-inclusive and all facilities are accessible for persons with disabilities.

Because providers take the time to explain complex treatment regimens with patience and empathy, patients take an active role in their healthcare and don’t only worry about their health when they get sick. Because there is close communication between primary and secondary healthcare providers, treatment interventions are oriented around the patient, their family and community, instead of a rigid hierarchy. We change our model of medical education to prioritize prevention, primary care and public health instead of obscure diagnoses and competitive sub-specializations, recognizing that these are necessary things but the vast majority of medical graduates will not become pediatric neuro-oncologists.

I dream a dream where even in the tiniest clinic in the furthest district beyond the last streetlight a midwife or a health inspector or a community aide has the power to change a system that perpetuates the very conditions we try so hard to treat. Instead of feeling like a useless band-aid, doomed to watch the wound fester and never heal, I hope we can reach for the idea that there is a better way.

When we feel like things can change,
we might actually
try
to
change
them.

And then, who knows what might happen? This is the part where I always wake up, shake the sleep from my eyes and get back in the arena to fight. Another day of being balm and band-aid, the believer and the battle cry. Another day to dream and press on, to make the dream come true.

.

Featured Photo credit: Luis Villasmil on Unsplash

Early Mornings (are a health hazard)

I’m hoping this becomes a trend.

Waking up early, I mean. Not suffering from smoke inhalation. It’s day six (?) of the Retirement Dump fire in Montego Bayor as we who live close by call it, “too damn long”. It’s really uncomfortable to wake up and go to sleep in the smell of smoke. Even more uncomfortable to do yoga in it. Not to mention the laundry. My bed sheets are soaking up the smog as we speak, and I don’t even want to think about my hair.

 

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DEATH FOG

One of my favourite things about our house-in-progress is that we finally have work desks right in front of the windows. But peering out my windows to contemplate the flowers in the garden is now a health hazard because I have to contend with emissions of carbon and god only knows what else in the air.

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Please ignore the cables and focus on the haze of death fog.

So on top of the probably indefinite State of Emergency, St. James is now slowly choking to death or at least serious illness. If bad things come in threes, I can’t wait to see what else is going to kick us when we’re down. That’s not true, I can totally wait. At least until I can breathe again.

 

 

 

Hopefully we come out of this with no serious ill effects. You know, other than migraines, chronic cough, upper respiratory infections,  exacerbated asthma. . . I could go on, but run on sentences are harder to do when the air is full of noxious fumes.

Til next time.

Things I want to shout about: everything I learn on Community Health

The Riverton City dump is a hot mess. Literally. It’s a hot mess that has outlived its life a thousand times over, like the ancient has-been who refuses to retire. Riverton started out at the same height as the rest of Kingston and St. Andrew and it now overlooks the sprawling plains of Jamaica’s capital. Layers of garbage are thrown down year after year, getting pressed into the earth by giant rollers. But now all the rollers are broken and the garbage, still being thrown down, has begun to pile up.

SANITARY LANDFILL RIVERTON DISPOSAL SITE
Lined with waterproof materials such as clay or plastic Natural clay liner of approximately 1.5m thick
Leachate management system NONE
Onsite operations – disposal, storage, formal sorting Onsite operations – disposal, storage, informal sorting
Daily covering of waste Covering of waste does not occur daily
Use of landfill equipment: compactors, tractors, bulldozers, tyre balers Use of [poorly maintained] landfill equipment: compactors, tractors, bulldozers, tyre balers
Clear separation of waste at tipping faces Separation of waste to some extent
Environmental monitoring – leachate and gas monitoring wells Monitoring wells for leachate only
Controlled access and egress Access and egress under limited control
Safety and directional signs Safety and directional signs
Ample security Limited security

This table borrowed without permission from Norbert Campbell of UWI, Mona. [My edits].

Let me give you a hint: it is NOT a day at the zoo.

In the midst of the sprawling one man’s trash landscape is Tyre City. Bales of tyres piled higher than a man’s shoulders sit grinning, a fire hazard to the whole facility and breeding ground for the infamous Portmore mosquitoes. The tyres are sometimes sent to individuals or companies who landscape, or to people fixing roads, but these tyres have been sitting here so long they have sunken into the landscape.

And then the tyre baler broke down.

Much like the infamous informal sorters who emerge unseen from the piles of rubbish carted in daily by dumptrucks. They dress like people from the Sahara, but theirs is a desert of plastic, cardboard and metal bits. They scale the mountains of garbage, picking their treasures from Kingston’s trash. But you wouldn’t dare call them scavengers. Proud and persistent, these workers make a pretty penny from their odd occupation and manage to live quite comfortably.

And they don’t like pictures.

But perhaps no one is more comfortable than the Riverton pigs. Huge, loud, dirty animals that roam the mud pits and shanty towns of Riverton City, they are kept in pens with access to the stream that runs through the dump. Take a second to ponder the environmental ramifications of that sentence. These pigs are not only native to Riverton. The next time you buy a piece of roadside jerk pork for an amazingly low price, think about where the vendor could have gotten the meat so cheap. It probably wasn’t your local meat shop.

Oink. Oink.

Perhaps the worst-off group at the Riverton City dump is the staff at the facility. They are subject to subpar working conditions: non-sterilized biological waste, the constant risk of radioactive waste slipping past the sensors (which happens more often than not), the rundown equipment and almost complete lack of proper maintenance. Not to mention government pay. And this list doesn’t even begin to cover aesthetic issues like the overwhelming heat and inescapable atrocious stench. The risk of vector-borne illnesses is impossibly high, what with numerous stray animals on site: goats and dogs, as well as smaller pests like rats and roaches.

The Riverton City dump is a hazard to the health of its workers and the community surrounding it.  Everyone is getting shortchanged, even the people whose trash is being collected and thrown there. They don’t know it yet, but they are steadily clogging a toilet that will someday overflow. And when it does, this public health disturbance will become a public health disaster.

I think the entire facility ought to be chucked into a giant autoclave. Or at least invested in so they can fill the damn thing properly every day.